Twenty-six days elapsed between the end of the meeting and the posting of these videos. (Typically the time frame has been 4-6 weeks….)
Day 1 May 22, 2013
Welcome & Call to Order – Day 1 (CFSAC Spring 2013)
May 22, 2013, 9:00 – 10:30 AM. http://www.youtube.com/watch?v=PBYumSQZxC4
Public Comment on Day 1 (CFSAC Spring 2013)
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 1, May 22, 2013, 11:45 AM – 1:00 PM. (I think the time is incorrect here. I think the start time should be 10:45AM) http://www.youtube.com/watch?v=85EFDQ2UPVw
Approve Prioritized Recommendations List – Day 1 (CFSAC Spring 2013)
May 22, 2013, 1:00 – 1:30 PM. http://www.youtube.com/watch?v=3U9VOgTNxBc
Determination of Medicare Coverage of Test and Treatments – Day 1 (CFSAC Spring 2013)
May 22, 2013, 1:30 – 2:30 PM. http://www.youtube.com/watch?v=1BvZ6YQ2YFM
Public Question & Answer on Day 1 (CFSAC Spring 2013)
2:45 – 3:15 PM. Public Q&A. http://www.youtube.com/watch?v=M7jKA8uuK-8
Committee Discussion and Plans for Day 2 (CFSAC Spring 2013)
3:15 — 5 PM. http://www.youtube.com/watch?v=VJ7VqYJTsWI
Day 2 May 23, 2013
Opening Remarks on Day 2 (CFSAC Spring 2013)
9:00 – 10:15 AM. http://www.youtube.com/watch?v=cfGa7_kU1bg
Health Insurance Marketplace – Day 2 (CFSAC Spring 2013)
10:15 – 11:00 AM http://www.youtube.com/watch?v=daJejV7B_XE
Public Comment on Day 2 (CFSAC Spring 2013)
11:15 AM – 12:15 PM http://www.youtube.com/watch?v=PHP4BzItyF0
Public Question and Answer on Day 2 (CFSAC Spring 2013)
1:30 – 3:00 PM. http://www.youtube.com/watch?v=D-wAHh3KC0w
Committee Discussion on Day 2 (CFSAC Spring 2013)
3:00 – 3:30 PM. http://www.youtube.com/watch?v=JVeavAWmHsI
Committee Discussion (Part #2) on Day 2 (CFSAC Spring 2013)
3:30 – 5:00 PM
Effective messages
Published June 26, 2013 Uncategorized Leave a CommentTags: advocacy, early onset ME/CFS, ME, ME/CFS, participation, public comment
A very worthwhile post at http://www.occupycfs.com/2013/06/25/precision-is-required/ highlights the importance of clarity, accuracy and effective messages in advocacy (applicable elsewhere also).
“…Effective communication requires understanding the context and language of the audience. If we are imprecise or inaccurate, the audience will get distracted by our mistakes and lose sight of what we are actually trying to say. In turn, this can lead to the failure of the overall communication through misunderstanding or even outright dismissal. ….
It is worth the time and energy invested to craft a specific, accurate and strategic request that speaks to the context of the audience. …
We owe it to each other and the ME/CFS patient community to get things right. We must speak with precision and clarity about complex topics, while also presenting a strong case for what ME/CFS patients need. It is not an easy thing to do, but it is essential to our collective and ultimate success.”
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