Posts Tagged 'video'

IOM webcast link (for live feed) and “Chronic Fatigue Syndrome and the Crisis in Biomedical Research”

(1) Mary Dimmock speaks with Llewelyn King about Chronic Fatigue Syndrome and the Crisis in Biomedical Research on White House Chronicle –

http://www.whchronicle.com/2014/01/chronic-fatigue-syndrome-and-the-crisis-in-biomedical-research/

(also available on these TV stations http://www.whchronicle.com/tv-stations/)

 

 

(2) re. IOM webcast, 27 January 2014

Registration NOT required to view webcast

Link for live webcast (beginning at 1PM EST):

http://www.iom.edu/Activities/Disease/DiagnosisMyalgicEncephalomyelitisChronicFatigueSyndrome/2014-JAN-27.aspx

Reminder (emphasis added – “At any point during the study, you may submit written comments to mecfs@nas.edu.”

(According to IOM, they will send an announcement when the video and meeting presentations are posted — estimated time — “a few weeks”.)

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CFSAC May 2013 videos have all been posted now

Twenty-six days elapsed between the end of the meeting and the posting of these videos. (Typically the time frame has been 4-6 weeks….)

Day 1 May 22, 2013

Welcome & Call to Order – Day 1 (CFSAC Spring 2013)

May 22, 2013, 9:00 – 10:30 AM.    http://www.youtube.com/watch?v=PBYumSQZxC4

Public Comment on Day 1 (CFSAC Spring 2013)

Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 1, May 22, 2013, 11:45 AM – 1:00 PM. (I think the time is incorrect here. I think the start time should be 10:45AM)    http://www.youtube.com/watch?v=85EFDQ2UPVw

Approve Prioritized Recommendations List – Day 1 (CFSAC Spring 2013)

May 22, 2013, 1:00 – 1:30 PM.   http://www.youtube.com/watch?v=3U9VOgTNxBc

Determination of Medicare Coverage of Test and Treatments – Day 1 (CFSAC Spring 2013)

May 22, 2013, 1:30 – 2:30 PM. http://www.youtube.com/watch?v=1BvZ6YQ2YFM

Public Question & Answer on Day 1 (CFSAC Spring 2013)

2:45 – 3:15 PM. Public Q&A.   http://www.youtube.com/watch?v=M7jKA8uuK-8

Committee Discussion and Plans for Day 2 (CFSAC Spring 2013)

3:15 — 5 PM.  http://www.youtube.com/watch?v=VJ7VqYJTsWI

Day 2 May 23, 2013

Opening Remarks on Day 2 (CFSAC Spring 2013)

9:00 – 10:15 AM. http://www.youtube.com/watch?v=cfGa7_kU1bg

Health Insurance Marketplace – Day 2 (CFSAC Spring 2013)

10:15 – 11:00 AM http://www.youtube.com/watch?v=daJejV7B_XE

Public Comment on Day 2 (CFSAC Spring 2013)

11:15 AM – 12:15 PM http://www.youtube.com/watch?v=PHP4BzItyF0

Public Question and Answer on Day 2 (CFSAC Spring 2013)

1:30 – 3:00 PM.  http://www.youtube.com/watch?v=D-wAHh3KC0w

Committee Discussion on Day 2 (CFSAC Spring 2013)

3:00 – 3:30 PM. http://www.youtube.com/watch?v=JVeavAWmHsI

 

 

 

Committee Discussion (Part #2) on Day 2 (CFSAC Spring 2013)

3:30 – 5:00 PM

http://www.youtube.com/watch?v=GEAqwVmPpBE

Video of FDA meeting (April 25/26 2013) now available

The FDA public workshop on Drug Development for CFS and ME ended on Friday at 5pm and the video is already available. (Pretty good turnaround time!)

Video of the April 25/26 2013 FDA meeting is now archived and available for viewing.

http://www.tvworldwide.com/events/fda/130425/

(Scroll down on the right side under webcast archives.)

 

Thanks for eagle-eyed Nielk for spotting it! 🙂

October 2012 CFSAC videos

(Sorry if these are not in order…. the last link is to a page that has all of the videos)

 

http://www.youtube.com/watch?v=4Zl2RX4URuI&feature=plcp Welcome & Opening Remarks (CFSAC Fall 2012)

http://www.youtube.com/watch?v=01hZYq4GMtI&feature=plcp Biomarkers – An Overview & Future Look (CFSAC Fall 2012)

http://www.youtube.com/watch?v=oIGpfvfFZ1w&feature=relmfu Public Comment on Day One – AM (CFSAC Fall 2012)

http://www.youtube.com/watch?v=buDxhejdg90&feature=plcp Agency Updates from HRSA, NIH, and FDA (CFSAC Fall 2012)

http://www.youtube.com/watch?v=IGASSh7YV3s&feature=plcp FDA & Drug Development (CFSAC Fall 2012)

http://www.youtube.com/watch?v=_fIEeQBdvxM&feature=plcp Public Comment on Day One – PM (CFSAC Fall 2012)

http://www.youtube.com/watch?v=Fs1A6KhHInU&feature=relmfu Committee Discussion & Plans for Day Two (CFSAC Fall 2012)

http://www.youtube.com/watch?v=PWBmqd8LDhg&feature=plcp Opening Remarks & Agency Updates (CFSAC Fall 2012)

http://www.youtube.com/watch?v=af_r5LiIjXQ&feature=relmfu Social Security Administration (CFSAC Fall 2012)

http://www.youtube.com/watch?v=qGb0U6EaI4o&feature=relmfu Public Comment on Day Two (CFSAC Fall 2012)

http://www.youtube.com/watch?v=MTHpny0u-XU&feature=relmfu ME/CFS Organizations (CFSAC Fall 2012)

http://www.youtube.com/watch?v=NFaXiiSdZqI&feature=relmfu A Path Forward (CFSAC Fall 2012)

http://www.youtube.com/watch?v=CO9bO-udcY0&feature=relmfu Finalize Recommendations (CFSAC Fall 2012)

http://www.youtube.com/user/USGOVHHS/videos?query=CFSAC Search results for “CFSAC”:

 

 

 

Link for CFSAC LiveStream

 

On Wednesday October 3rd and Thursday October 4th, the CFSAC meeting will be LiveStreamed. The link is:

http://www.hhs.gov/live/

 

CFSAC Meeting October 3 – 4

Agenda
October 3, 2012

9:00 am

Call to Order
Roll Call

Gailen Marshall Jr. M.D., PhD
Chair

9:15 am

Welcome Statement from the Assistant Secretary for Health

Howard K. Koh, M.D., M.P.H.Assistant Secretary for Health
U.S. Department of Health and Human Services

9:45 am

Opening Remarks

Housekeeping

Gailen Marshall Jr. M.D., PhD Chair

Nancy C. Lee, M.D.
Designated Federal Officer

10:00 am

Biomarkers
An Overview and Future Look

Jordan Dimitrakoff, M.D., Ph.D.
Mary Ann Fletcher, Ph.D.
Committee Members

11:00 am 

Break

11:15 am 

Public Comment

Public

12:15 pm

Lunch Break

1:15pm

Agency Updates:
HRSA, NIH, FDA

Ex Officio Members

2:15pm

FDA and Drug Development

Sandra L. Kweder, M.D., F.A.C.P.
RADM U.S. Public Health Service
Deputy Director, Office of New Drugs
Center for Drug Evaluation & Research, FDA

3:15 pm  

Break

3:30pm

Public Comment

Public

4:30pm

Committee Discussion and Plans for Day 2

Committee Members

5:00 pm

Adjourn

Nancy C. Lee, M.D.

Agenda

October 4, 2012

9:00 am

Call to Order
Opening Remarks
Roll Call


Housekeeping

Gailen Marshall Jr. M.D., PhD
Chair

Nancy C. Lee, M.D.
Designated Federal Officer

9:15 am

Agency Updates:
CMS, AHRQ, CDC, SSA

Ex Officio Members

10:15 am

Social Security Administration

Arthur R.(Art) Spencer
Associate Commissioner,
Office of Disability Programs
SSA

11:15 am

Break

11:30 am

Public Comment

Public

12:30 pm

Lunch Break

Subcommittee Members

1:30 pm

ME/CFS Organizations

Panel Discussion
ME/CFS Organizations

2:30 pm

Break

2:40 pm

ME/CFS Case Definition – A Path Forward

Gailen Marshall Jr. M.D., PhD
Chair
Committee Members

3:40 pm

Committee Discussion: Finalize Recommendations

Committee Members

5:00 pm

Adjourn

Nancy C. Lee, M.D.

 

Minutes, public comment (and videos) of the June 13/14 2012 CFSAC meeting now available online

 

The minutes and public comment from the meeting of the Chronic Fatigue Syndrome Advisory Committee,  June 13 – 14, 2012 are now available on the CFSAC website at http://www.hhs.gov/advcomcfs/meetings/index.html

http://www.hhs.gov/advcomcfs/meetings/minutes/cfsac20120613.pdf

http://www.hhs.gov/advcomcfs/meetings/minutes/cfsac20120514.pdf

Videos of the June 13/14 2012 CFSAC meeting:

http://www.youtube.com/watch?v=C4a41ZspGfw&list=PL600CB038194B4593&index=2&feature=plpp_video

http://www.youtube.com/watch?v=qY_X4XEx47w&list=PL600CB038194B4593&index=3&feature=plpp_video

http://www.youtube.com/watch?v=1SUqrq6l6RU&list=PL600CB038194B4593&index=4&feature=plpp_video

http://www.youtube.com/watch?v=eXDpTky6zCQ&list=PL600CB038194B4593&index=5&feature=plpp_video

http://www.youtube.com/watch?v=Nk-A_drP6C0&list=PL600CB038194B4593&index=6&feature=plpp_video

http://www.youtube.com/watch?v=nxe4lzKNxhQ&list=PL600CB038194B4593&index=7&feature=plpp_video

http://www.youtube.com/watch?v=7ydzt9qEDLk&list=PL600CB038194B4593&index=8&feature=plpp_video

http://www.youtube.com/watch?v=otMR-txvjd8&list=PL600CB038194B4593&index=9&feature=plpp_video

http://www.youtube.com/watch?v=IRgGeob2cPA&list=PL600CB038194B4593&index=10&feature=plpp_video

http://www.youtube.com/watch?v=ubjGm5dILpY&list=PL600CB038194B4593&index=11&feature=plpp_video

http://www.youtube.com/watch?v=Ylx9UgeYyCs&list=PL600CB038194B4593&index=13&feature=plpp_video

http://www.youtube.com/watch?v=iDbs4ztokuM&list=PL600CB038194B4593&index=14&feature=plpp_video

REMINDER – the next CFSAC meeting is October 3rd and 4th, 2012.

The meeting will be held at the Hubert Humphrey Bldg, Room 800, 200 Independence Ave. Washington DC. 

videos of the June 13/14 2012 CFSAC meeting are now online

The videos are available to view.

 

http://www.youtube.com/watch?v=C4a41ZspGfw&list=PL600CB038194B4593&index=2&feature=plpp_video

http://www.youtube.com/watch?v=qY_X4XEx47w&list=PL600CB038194B4593&index=3&feature=plpp_video

http://www.youtube.com/watch?v=1SUqrq6l6RU&list=PL600CB038194B4593&index=4&feature=plpp_video

http://www.youtube.com/watch?v=eXDpTky6zCQ&list=PL600CB038194B4593&index=5&feature=plpp_video

http://www.youtube.com/watch?v=Nk-A_drP6C0&list=PL600CB038194B4593&index=6&feature=plpp_video

http://www.youtube.com/watch?v=nxe4lzKNxhQ&list=PL600CB038194B4593&index=7&feature=plpp_video

http://www.youtube.com/watch?v=7ydzt9qEDLk&list=PL600CB038194B4593&index=8&feature=plpp_video

http://www.youtube.com/watch?v=otMR-txvjd8&list=PL600CB038194B4593&index=9&feature=plpp_video

http://www.youtube.com/watch?v=IRgGeob2cPA&list=PL600CB038194B4593&index=10&feature=plpp_video

http://www.youtube.com/watch?v=ubjGm5dILpY&list=PL600CB038194B4593&index=11&feature=plpp_video

http://www.youtube.com/watch?v=Ylx9UgeYyCs&list=PL600CB038194B4593&index=13&feature=plpp_video

http://www.youtube.com/watch?v=iDbs4ztokuM&list=PL600CB038194B4593&index=14&feature=plpp_video