Speak Up About ME maintains a list of early onset ME/CFS.

If you came down with ME/CFS before age 23, contact speakupaboutme at gmail dot com.


name (let us know if we should only use your full name, first name only or a nickname that you provide),

age at onset,

age at diagnosis,

current age,

location (country is sufficient).

(Note – In providing this information, you grant permission for Speak Up About ME to use this information as we see fit.   Example – showing the CDC, NIH, DHHS, CFSAC, media, etc. how many patients with early onset ME/CFS there are.)

Encourage others with early onset ME/CFS to be included on the list also.


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