Speak Up About ME works to empower those affected by ME
(aka ME/CFS, CFS, CFIDS, and a slew of unprintable names as well)
– especially young people with ME/CFS and their families.
We work to help people find their advocacy voice,
to help people develop the confidence in their knowledge about ME,
so that people can get the services they DESERVE, and
so that people can work to change the misconceptions about ME.
We welcome you to work with us!
(We use the term early onset ME/CFS to refer to people who became sick with ME/CFS before the age of 23.)
Wondering why I use photos of two young men in the header, even though more women than men live with ME/CFS, and onset of ME/CFS is usually after age 30?
The easiest explanation is that these two young men are the patients I know the best.
They are the ones I live with.
They both have early onset ME/CFS, one having gotten sick at age 12 and the other at age 14.
(They are also the ones I can usually access of photos of.)