We have endured more than 30 years of neglect, dreadful stigma, and woefully insufficient research funding for this horrid disabling disease.
One day for awareness doesn’t seem like enough to make enough of a difference in the current (inappropriate) status quo. We need a significant change!
I think we need a lengthy, aggressive awareness campaign as part of an intensive overall of policy regarding this disease.
Some thoughts on what an awareness campaign might entail are detailed here: