Videos to watch, post to read….

We urge you to:

(1) watch these videos by Dr. Nigel Speight about ME in children

http://youtu.be/XcRZo1vO53c

http://youtu.be/XcRZo1vO53c

 

AND

(2) read this great post by Dr. Leonard Jason: http://blog.oup.com/2014/01/diseases-can-stigmatize-chronic-fatigue-syndrome/

“Diseases can stigmatize

By Leonard A. Jason

Names of diseases have never required scientific accuracy (e.g. malaria means bad air, lyme is a town, and ebola is a river). But some disease names are offensive, victim-blaming, and stigmatizing. Multiple sclerosis was once called hysterical paralysis when people believed that this disease was caused by stress linked with oedipal fixations. AIDS was initially called “Gay Men’s disease” when it was considered a disease only affecting white gay men. Fortunately, when these disease names were changed, those afflicted with Multiple Sclerosis and AIDS experienced less stigma. Inspired patient activists from around the world are currently engaged in another major effort to rename chronic fatigue syndrome (CFS). It is a political struggle to alleviate some of the stigma caused by the language of scientists at the CDC 25 years ago. ….”        (http://blog.oup.com/2014/01/diseases-can-stigmatize-chronic-fatigue-syndrome/)

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