Early/pediatric onset list reminder

People within our community have many different perspectives, and yet those differences pale in comparison to our commitment to move things forward.

We are learning a lot from each other as we engage in interesting and informative discussions. We have many common goals.

As we look forward to 2013 we hope that our community continues to build on our strengths so we can make even greater strides for the benefit everyone affected by ME(CFS).



Speak Up About ME maintains a list of early/pediatric onset ME/CFS.

If you came down with ME/CFS before age 23, please add your name and illness info to the list*!


name (let us know if we should use your full name, first name only or a nickname that you provide),

age at onset,

age at diagnosis,

current age,

location (country is sufficient).

Encourage others with early (pediatric) onset ME/CFS to get their onset information listed also.

Send your onset info to: speakupaboutme at gmail dot com.


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