(Per Robert Miller)
ME/CFS Patients – Let the FDA Know you Exist!!!
SPREAD THE WORD! SPREAD THE WORD! SPREAD THE WORD!
PLEASE Encourage attendance!
This is one of the most important meetings for CFS/ME Patients – Thursday December 20th, is a public meeting for the FDA review for approval (hoped for) of the first ever treatment for Chronic Fatigue Syndrome.
It is important to be seen – FDA is used to seeing people attend these meetings. Other disease organizations/patients make sure the FDA knows they exist by getting patients and loved ones in front of FDA every chance they get.
If patients do not attend, FDA will think we are not interested. Please attend!
For yourself and all those suffering, we need you and your loved ones to come! You do not need to be there all day, but please attend the Public Comment Session that is from (about) Noon to 2:30 pm. Please keep in mind that this meeting could be a driving force to change the course of this illness.
We know it’s a struggle, as patients, we also know it is hard physically & mentally. We have patients coming from across the U.S. at great cost to themselves. (Giving up time with family & friends during this Holiday Season) We know the timing is BAD, but since when have our disabilities to attend meetings been taken into account?
An approved treatment for CFS will legitimize our illness in the medical community and other drug companies will see a new opportunity, which means Research.
Here’s where to go and when:
December 20, 2012
8AM-5PM (with patients giving public comment around 1:00 pm based on meeting progress, Enter by Noon)
FDA White Oak Campus
10903 New Hampshire Avenue
Building 31 Conference Center
The Great Room, (room 1503)
(Sign in at Building 1, BRING PHOTO ID )
Silver Spring, MD 20993-0002
No need to register; just bring ID. Enter the meeting by Noon. There is parking at FDA. You can bring food or there is a food stand there. For more information go to: