and now, sending good thoughts to patients in Norway – updated

A grant application (amount 9 million Norwegian kroner which is $1,554,381US as of 17 Nov. 2012) has been made in Norway to study “The Lightning Process” and ME.

A little bit about “The Lightning Process” created by Phil Parker:

It is claimed that “The Lightning Process” can cure MS, fibromyalgia, depression and ME (or ME/CFS) among many other diseases. It is also claimed, that on the “The Lightning Process” 3-day course, patients with dairy, gluten and/or sugar intolerances have gotten over these – in one day.

There is quite a bit of secrecy surrounding “The Lightning Process” (http://www.lightningprocess.com/Lightning-Process-2/). Before attending, participants sign a form acknowledging that they will not disseminate information received during the course.

Participants are told that success hinges on devoting themselves wholeheartedly to mastering the process.

This 3-month followup is not dated so, there is no way to know if the proposed 6 and 12 month followups have taken place, and if so, what the data indicates. http://www.lightningprocess.com/data/uploads/Outcome%20Measures%20Study%20interim%20report%20Sep%2011.pdf

Given the variability of MS and ME/CFS symptoms, it is possible participants – whose diagnoses were self-reported – were already on an upswing…. One might also wonder if the high cost of the course (about 620 pounds – in 2010 or about $984.68 US dollars) might influence patient’s responses about how well (or not) their money had been spent.

It is also clear that not enough is published about the numbers of people who did not improve (or worsened) as a result of “The Lightning Process”.

There are many criticisms (and some support) of “The Lightning Process”, but our concern at present, is the possible Norwegian study.

Few study details are available.

Those applying for the grant say there will be 200 patients in the study – 100 undergoing “The Lightning Process” and the other 100 receiving (as yet unspecified) treatment at hospitals, patients will be followed for two years, and will be interviewed repeatedly during and after the study.

There is uncertainty about whether this study can use Lightning Process (LP) coaches because LP coaches are required to pay a per-patient-royalty.

It seems that the royalty requirement was not made apparent to those applying for the study money.

This raises additional questions about the study – especially since a well-known Norwegian Lightning Process provider is an adviser for the study.

The applicants say that even if they don’t use Lightning Process coaches, they will use the same treatment methods, though one would assume that the secrecy surrounding those methods may limit the openness of the research, methodology, discussion, etc.

Amid claims that such a study does not mean that ME is a psychosomatic disorder, the Principal Investigator of the Norwegian Institute of Public Health, Per Magnus, was asked –

– Is it normal that the Institute will invest so much in researching a method as an alternative touch as Lightning Process?
– No, I do not think it’s normal. I can not remember anything similar …, says Magnus.” (Google translate)

http://mariasmetode.no/wp-content/uploads/2012/11/LP-Dag-og-Tid-side-1-1.pdf      http://mariasmetode.no/wp-content/uploads/2012/11/11.pdf

Certainly, nine million Norwegian kroner, or $1,554,381.00US, or 1,221,325.34 Euros, would be hugely beneficial for biomedical studies for ME/CFS as opposed to another study that puts the onus for getting better on the patient.

We hope that the Norwegian Directorate of Health has not forgotten that in October 2011 they said:

“Jeg tror at vi, i for liten grad, har klart å møte menneskene som har kronisk utmattelsessyndrom på en god nok måte. Jeg tror at det er riktig å si at vi ikke har utviklet en god nok helsetjeneste for disse, og det beklager jeg.”

Bjørn Guldvog, the Deputy Director General of the Norwegian Directorate of Health

English translation:

“I think that we have not cared for people with ME to a great enough extent. I think it is correct to say that we have not established proper health care services for these people, and I regret that.”

http://www.euro-me.org/news-Q42011-003.htm

We hope the Norwegian Directorate of Health remembers that PROPER health care services must readily available for people with ME/CFS.

The following Google translations, into English, are articles about the proposed study and some key players.

http://translate.googleusercontent.com/translate_c?depth=1&ei=6fmnULa9O7DG0AH75YCgAw&hl=en&prev=/search%3Fq%3Dj%25C3%25B8rgen%2Bjelstad%2Bblogg%26hl%3Den%26tbo%3Dd%26biw%3D1680%26bih%3D878&rurl=translate.google.com&sl=no&u=http://dagogtid.no/nyhet.cfm%3Fnyhetid%3D2412&usg=ALkJrhjLOlvC0lrXGKdrhRTfaaxsu2Gu9A

http://translate.googleusercontent.com/translate_c?depth=1&ei=6fmnULa9O7DG0AH75YCgAw&hl=en&prev=/search%3Fq%3Dj%25C3%25B8rgen%2Bjelstad%2Bblogg%26hl%3Den%26tbo%3Dd%26biw%3D1680%26bih%3D878&rurl=translate.google.com&sl=no&u=http://www.dagogtid.no/nyhet.cfm%3Fnyhetid%3D2400&usg=ALkJrhgA57RU-MCSB-1Nywl6wRLDdTI-4Q

http://translate.googleusercontent.com/translate_c?depth=1&ei=6fmnULa9O7DG0AH75YCgAw&hl=en&prev=/search%3Fq%3Dj%25C3%25B8rgen%2Bjelstad%2Bblogg%26hl%3Den%26tbo%3Dd%26biw%3D1680%26bih%3D878&rurl=translate.google.com&sl=no&u=http://www.dagogtid.no/nyhet.cfm%3Fnyhetid%3D2413&usg=ALkJrhhoiyJI6SjqdHKQyI2xCpLtUkqEWw

 

Update These articles (Google translation) were posted on Co-Cure.

In the first, the Norwegian College of General Practice describes why they do not feel they can recommend the use of the ICC. The second article is the response by the Norwegian ME Association.

http://translate.google.com/translate?hl=en&sl=no&tl=en&u=http%3A%2F%2Fme-foreningen.com%2Fmeforeningen%2F%3Fp%3D4450

 

http://translate.googleusercontent.com/translate_c?depth=1&hl=en&rurl=translate.google.com&sl=no&tl=en&u=http://legeforeningen.no/Fagmed/Norsk-forening-for-allmennmedisin/Horingsuttalelser/Horing–utkast-til-rundskriv-om-CFSME-/&usg=ALkJrhi4EqX4znxSZNn2UJWna3BCm1LIng

 

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