Advocacy webinar by the FDA

 

The FDA is hosting a webinar on November 15th. Sign up details are below. (Note, registration is limited to 250 people and FDA will not be answering questions about treatment options or development of treatment therapies.)

 

“Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Webinar: Working Together for Change

The Office of Special Health Issues will be hosting a 1 hour webinar that will discuss Patient Advocacy.

The discussion will include presentations from other patient representatives and patient organizations on how they effectively worked with the FDA and other entities.

There will be an opportunity for those of you who live and struggle with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome to ask questions about patient advocacy and how to effectively work with government agencies and drug developers.

Unfortunately we will not be able to answer specific questions about treatment options or development of new therapies for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.

Registration is limited to the first 250 registrants

When
November 15, 2012 2:00 PM  –  3:00 PM
Eastern Time Zone

View Event Summary

RSVP
November 15, 2012″

Sign up using the link below:

 http://www.cvent.com/events/myalgic-encephalomyelitis-and-chronic-fatigue-syndrome-webinar-working-together-for-change/invitation-d6bfadbec016462f9fef1168273ec3d1.aspx

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