Speak Up About ME!
(Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
Is much more than “fatigue”.
ME/CFS is a chronic, often severely disabling disease that affects the autonomic nervous system, immune system, endocrine system, among others. ME/CFS is unique in that it results in “…marked, rapid physical and/or cognitive fatigability in response to exertion, which may be minimal, such as activities of daily living or simple mental tasks…”* causing relapses that can last for weeks.
ME/CFS affects more than one million Americans of every age, race, ethnicity, and socioeconomic group.
ME/CFS costs the United States over $20 billion/year in medical/disability costs and lost productivity**.
People with ME/CFS need effective treatments so that they are no longer destined to a lifetime of disability.
What must be done:
Provide ongoing research funding on par with equally disabling illnesses such as MS. (e.g.-NIH budgets $6/ME/CFS patient for research vs. $270/MS patient for research ***.)