Thanks for taking action

Thank you for taking action.

This Call to Action is over (as of May 2, 2012).

We now need to find out when the meeting will be (we will get it -won’t we?).

Reminder to send letters for the FDA Call To Action!

Did you send a letter yet to Secretary of Health Kathleen Sebelius asking for a meeting for ME/CFS to push the FDA to approve new drugs for ME/CFS and FM?

If yes, YEAH!

If not, remember – INTENSE LOBBYING is how AIDS/HIV got put on the government’s map.  AIDS/HIV now gets $3 BILLION a year for research from the NIH (National Institutes of Health); CFS gets $6 million.  AIDS/HIV sufferers now have multiple drugs to fight the disease.

We have none.

Dr. Nancy Klimas has said, “…My HIV patients for the most part are hale and hearty thanks to three decades of intense and excellent research and billions of dollars invested.  Many of my CFS patients, on the other hand, are terribly ill and unable to work or participate in the care of their families.  I split my clinical time between the two illnesses, and I can tell you, if I had to choose between the two illnesses, I would rather have HIV….” (NYTimes, 10/15/09)

WE MUST STAND UP FOR OURSELVES, and ask our family and friends to do the same, or our situation will NEVER change.

Please write.

It is only by inundating these government officials with letters that we will get any action to research and approve treatments.  Many other, much lesser-impact diseases get FDA approvals for drugs.

We must insist that we be listened to!


Please send in your letter and ask your relatives and friends to as well before the May 2 deadline if possible but otherwise as soon as you can. The letter, email addresses and instructions can be found here on Co-Cure and Phoenix Rising


Thank you to everyone who helped!



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