SPEAK UP ABOUT ME June 13th and 14th, 2012


Speak Up About ME especially welcomes early onset patients.

Who:    young people with ME/CFS and ME/CFS advocates

What:   Speak Up About ME

Where: Washington DC Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting

Why:    to Speak Up About ME –

to raise awareness about ME/CFS because ME/CFS affects people of all ages/genders/etc.,

to provide public comment to the CFSAC committee,

to be Invisible No More!

When: June 13th and 14th 2012

We are going to YANK the nation’s heartstrings again.

Young People with ME/CFS –


Speak Up About ME, to be

Invisible No More!

Why is my participation important?

Physical presence and providing your public comment in person at the CFSAC has great impact and is an empowering experience.

Providing your public comment via DVD is also very powerful.

Public comment can be provided by phone and in writing by those who are unable to attend in person.

(Read more about public comment here: https://speakupaboutme.wordpress.com/public-comment-at-the-cfsac-meetings/ )


We gladly welcome mentors, volunteers, supporters, contributors.


Help defray expenses for Speak Up About ME participants!

https://speakupaboutme.wordpress.com/support-speak-up-about-me/ for information on how to contribute.


Contact Speak Up About ME at gmail dot com  (all one word, no spaces) for more information.


If you are so sick, why are you taking part in Speak Up About ME?

Advocacy and empowerment– we don’t want anyone else to go through what we are going through. By raising awareness, we work to ensure that no one else has to go through this.  This is a personal sacrifice and it takes weeks for us to return to our previous level of functioning.  And yet, participation is empowering, despite the toll it takes on us.


What can I tell my school about the event?

Speak Up About ME participants are part of government in action. Participating in the CFSAC and/or meeting with Congressional representatives on Capitol Hill are integrated learning experiences (advocacy, public speaking, science, geography, social studies).



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