“The Chronic Fatigue Syndrome Advisory Committee (CFSAC), 2012 spring meeting will be held on Wednesday, June 13, 2012 from 9:00 a.m. until 5:00 p.m. EST and Thursday, June 14, 2012 from 9:00 a.m. until 5:00 p.m. EST.
The meeting will be held at the U.S. Department of Health and Human Services, Hubert Humphrey Building, 200 Independence Avenue, S.W., Room 800, Washington, D.C. 20201. For directions please visit http://www.hhs.gov/about/hhhmap.html.
The meeting will be webcast live [YES, THIS IS LIVESTREAM AGAIN!!!] and [option] available by audio (listening-only). Additional information and the CFSAC agenda will be posted to the CFSAC website by June 4, 2012.” http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html
Under federal regulations, notice must be given seven calendar days prior to the meeting.
Many of us have repeatedly stressed to the DHHS and to the CFSAC that because the ME/CFS community is comprised of many people with severe disabilities, we need and deserve much more notice in order to make arrangements to participate.
We have gotten about seven weeks(!) notice.
This will help those of us who can participate in person and everyone who will be participating via public comment.
Have you written your public comment yet?
Please note – registration for attendance and public comment is not yet open.