What do I need to know about my public comment?


  • **** BE PREPARED TO REQUEST PUBLIC COMMENT TIME AS SOON AS IT IS ANNOUNCED ****

If you plan to submit public comment for the spring 2012 CFSAC meeting, notify us NOW at SpeakUpAboutME at gmail dot com so that we can add you to contact list and notify you as soon as we know about the announcement.

Slots fill up VERY fast – be prepared to put in your request immediately following the announcement (time slots will be long gone before the deadline) for a time slot for the spring 2012 CFSAC meeting.

Please let us know when you request a time (cc: SpeakUpAboutME at gmail dot com on your email requesting a time slot) and let us know as soon as you receive a time slot.

For more information, please see the CFSAC website.

  • Oral (in person, by phone or DVD) public comment provided at CFSAC can be no more than 5 minutes long. If your written public comment is longer than that, you may submit it and it will be entered into the public record, but oral public comment can be NO MORE than 5 minutes in length. (Suggestions – time yourself reading it aloud to someone, edit, and then time yourself again. Be concise.)

When you submit your public comment, send us a copy of your public comment so that we can compile public them.  Email it to SpeakUpAboutME at gmail dot com.

  • ME/CFS is a very isolating illness. Your public comment can include how many other young people you know with ME/CFS, how you have been treated by others (parents, schools, medical professionals, friends, etc.)
  • We can connect with you with a mentor to help you craft your public comment. Please let us know ASAP via email if you want to be connected with a mentor.
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