Speak Up About ME maintains a list of early onset ME/CFS.
If you came down with ME/CFS before age 23, contact speakupaboutme at gmail dot com.
name (let us know if we should only use your full name, first name only or a nickname that you provide),
age at onset,
age at diagnosis,
location (country is sufficient).
(Note – In providing this information, you grant permission for Speak Up About ME to use this information as we see fit. Example – showing the CDC, NIH, DHHS, CFSAC, media, etc. how many patients with early onset ME/CFS there are.)
Encourage others with early onset ME/CFS to be included on the list also.